Oh, I still mourn my high heels! I was a pretty snazzy dancer too (disco-don't mock) and I had lovely handwriting and played the piano. Still can sometimes
(not often), we never know do we? Thankfully, I too, can still walk. Not in a straight line or down hill or without falling into clothing racks though. I get a
kick out of it though. What better way for the big gal upstairs to tell you, "always expect the unexpected!".
I don't know if there is a strictly M.S. board around. We'll have to go spelunking. I'm wiped out right now (been organizing and cleaning). I tell
those who worry about me, 'I don't know how long I'll feel this way, so I'm doing it while I can!'.
I'll try to do some investigating tonight! The weather here dips below 60 at night so that's when I'm in my element.
I'm off to sleep but I'll be around later. Good to have you as a buddy!
dips below 60? i'll be happy when we get some steady 60 daytime temps here! then i can finally pack away my space heater! LOL of course, that means
dragging the a/c unit out....
i know of a few groups, but those tend to be "whine heavy" and while we all have our days, hearing it 24-7 is quite the bummer. i'll see if i can
find anything better geared toward the nutjobs we are!
and did you see my age? i so can't mock disco...i still have donna summer music that i listen to! :)
I'm getting into all the groovy stuff you can do on the computer! Hotmail, G-mail, etc.
I was diagnosed when I was 24, so I've 'lived' with my diagnosis half of my life. I had my initial attack and then three (I think) more boom, boom,
boom! I still have ghosts of all the symptoms I've had but I am doing great right now. I'm feeling better now than I was eight years ago. Do you have
all the good books and stuff that are available now? I learned as I went, help from others is such a blessing!
I have
and others...
If, and when, you feel comfortable, we could exchange ringy-dingy #. I'm trying to create my own support group with just the right crazies!
i'm closely approaching the half-life mark with the MonSter, but what can you do, you know? lucky me went from RR to SP over the years, but even though i
can't walk well or as far as i used to, i *can* still walk so it's all good. (i do miss wearing high heels though! LOL) i think the attitude and the
plethora of drugs (the legal ones) keep things sort of stable!
and support groups are good, because i think we all have different experiences and can learn from and lean on each other. hmm...i wonder if there's some
way to start a "group" on yuku, as it looks like there's a good handful of us. besides, some of the stuff we go through, do others in OT *really*
want to hear about it?
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igber
04/14/08
I don't know if there is a strictly M.S. board around. We'll have to go spelunking. I'm wiped out right now (been organizing and cleaning). I tell those who worry about me, 'I don't know how long I'll feel this way, so I'm doing it while I can!'.
I'll try to do some investigating tonight! The weather here dips below 60 at night so that's when I'm in my element.
I'm off to sleep but I'll be around later. Good to have you as a buddy!
iggy
Original comment »
igber
04/13/08
I'm getting into all the groovy stuff you can do on the computer! Hotmail, G-mail, etc.
I was diagnosed when I was 24, so I've 'lived' with my diagnosis half of my life. I had my initial attack and then three (I think) more boom, boom, boom! I still have ghosts of all the symptoms I've had but I am doing great right now. I'm feeling better now than I was eight years ago. Do you have all the good books and stuff that are available now? I learned as I went, help from others is such a blessing!
I have
If, and when, you feel comfortable, we could exchange ringy-dingy #. I'm trying to create my own support group with just the right crazies!
M.S. can be a
Love,
iggy
Original comment »
igber
04/13/08
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